Centre of Evidence of Dermatology Best practice guidelines

Guidelines hidradenitis suppurativa Updated on august 2019


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Quality of life

Back to decision-making tree Print last updated on 07/04/2020

When measuring quality of life, physicians should take the following into consideration: symptom evaluation (pain, odour, itchiness), impact on daily activities (restrictions on professional, sexual and social activities), emotional consequences (anxiety or depression should be determined).

Different questionnaires are used in the literature to assess the impact of HS on patient quality of life. The work group recommends the Dermatology Life Quality Index (DLQI), a short questionnaire which the patient can fill in quickly during consultation.

Recently, more specific questionnaires like the HS Quality of Life (HS-QoL) and the HS Burden of Disease (HSBOD) are currently being evaluated.

Numerous observational studies have brought to light the greater impact of HS on quality of life in comparison with other dermatological diseases.

Factors associated with lower quality of life, found in the literature, are mainly the degree of severity of the disease and the number of cutaneous sites affected.

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